ORGANISATIONS TO INFORM, EDUCATE AND ADVOCATE FOR PATIENTS

Advocacy Group

Digestive Cancers Europe, formerly EuropaColon, is the umbrella organisation in Europe, representing the voice of patients with digestive cancers (oesophageal, gastric, colon, rectum, pancreatic and rare cancers), their families and their carers. Currently, the organisation has a membership of 30 and is still growing.

Cancer patients’ umbrella organisation

The European Cancer Patient Coalition (ECPC) is the largest European cancer patients umbrella organisation. Local cancer patient organisations can be identified by searching the members’ database here.

Patients groups umbrella organisation

The European Patients Forum (EPF) is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe.

Education and training to increase the capacity and capability of patients

The European Patients’ Academy, EUPATI trains patient experts on medicines development, clinical trials, medicines regulations, health technology assessment. Additionally, EUPATI offers and maintains the Toolbox on Medicine Development, and coordinates a network of national platforms for patient advocates.

Support for people suffering from colorectal cancer and awareness-raising for early detection of colorectal cancer

The Felix Burda Foundation is a German-based, internationally active foundation that deals exclusively with the prevention and early detection of colorectal cancer.

Information and support services

This Irish national cancer charity is involved in cancer research, advocacy, information, education and support. The Irish Cancer Society helps influence decision-makers at government level and cancer policy in Ireland.

Information, Education, Conversation

Bowel cancer, also known as colorectal cancer: what it is, stages, getting diagnosed, types and grades, treatments, and more.

Information, Education

Up to date and reliable information about bowel cancer including symptoms, risk factors, screening, diagnosis, treatment and living with and beyond bowel cancer.