ORGANISATIONS TO INFORM, EDUCATE AND ADVOCATE FOR PATIENTS
Advocacy Group
Digestive Cancers Europe, formerly EuropaColon, is the umbrella
Educating, empowering and advocating for people affected by KRAS
KRASKickers is a non-profit organisation for people with any KRAS oncogene cancer including patients, survivors and all that care.
They connect people to current research, resources and their community.
Cancer patients’ umbrella organisation
The European Cancer Patient Coalition (ECPC) is the largest European cancer patients umbrella organisation. Local cancer patient organisations can be identified by searching the members’ database here.
Patients groups umbrella organisation
The European Patients Forum (EPF) is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe.
Education and training to increase the capacity and capability of patients
The European Patients’ Academy, EUPATI trains patient experts on medicines development, clinical trials, medicines regulations, health technology assessment. Additionally, EUPATI offers and maintains the Toolbox on Medicines R & D and Patient Engagement, and the EUPATI Training Portfolio.
Support for people suffering from colorectal cancer and awareness-raising for early detection of colorectal cancer
The Felix Burda Foundation is a German-based, internationally active foundation that deals exclusively with the prevention and early detection of colorectal cancer.
Information and support services
This Irish national cancer charity is involved in cancer research, advocacy, information, education and support. The Irish Cancer Society helps influence decision-makers at government level and cancer policy in Ireland.
Information, Education, Conversation
Bowel cancer, also known as colorectal cancer: what it is, stages, getting diagnosed, types and grades, treatments, and more.
Information, Education
Up to date and reliable information about bowel cancer including symptoms, risk factors, screening, diagnosis, treatment and living with and beyond bowel cancer.